Study looking for twins with Eosinophilic esophagitis
Food Allergy Peeps,
Please pass this on if you know someone who qualifies! The more we learn, the closer we are to finding treatment!. :) Thanks, the FAQ
Dear Friend of FAI,
Eosinophilic esophagitis (EE) is an allergic disorder that occurs in the esophagus (the tube that carries food from the mouth to the stomach). Symptoms of EE are different depending on age, but the most prevalent are reflux, difficulty swallowing, food impactions, nausea, abdominal pain, poor weight gain, vomiting, and poor appetite. Treatment options range from a restricted diet to the use of a swallowed steroid.
EE can occur in multiple members of families. Prior studies have shown that twins have a great risk of co-developing EE if one twin already suffers from the disorder. To learn more, investigators are conducting further research on siblings and twins with EE. The Cincinnati Center for Eosinophilic Disorders (CCED) at Cincinnati Children's Hospital Medical Center is a multi-disciplined team that provides leading, specialized care for eosinophilic patients and is conducting research on this problem.
For a study on the occurrence of EE in twins and multiples, CCED is seeking participants from around the country. Participation is conducted through the mail and involves filling out a questionnaire and providing saliva samples. To participate, you must be a twin with a medically confirmed diagnosis of EE. FAI is providing this information as a service to our constituents. For detailed information about this clinical trial and to contact the research coordinators, click here.
FAI supports research to find a cure for life-threatening food allergies; clinical activities to identify and treat those at risk; public policy to make the world safer for those afflicted; and educational programs to make the hospitality industry, schools, day care centers, and camps safer.